Every year when the annual NMO Patient Day sponsored by the Guthy Jackson Foundation rolls around, I get nostalgic since that’s where NMO Diaries was born. Unfortunately, I haven’t been able to attend for quite a few years since I’m always tied up with other events during the Patient Days. I know there are many patients and caregivers who are also unable to attend, and the nice thing is the GJCF will often stream or upload key videos from the day’s events online for worldwide viewing. You can check out
Today is the second annual Dining for NMO Day. Last year, the inaugural Dining for NMO Day raise over $18,000 for the Guthy Jackson Foundation, which puts 100% of the donated funds towards research for treatment and an eventual cure for Neuromyelitis Optica (NMO), the same chronic disease that caused my vision loss. The GJCF has been a support community for me, and I’ve spoken at one of the NMO Patient Days before, which is why I try to support the foundation as much as I can. Dining for NMO
Many of you know I love food. What you may not know is I lost my vision because of Neuromyelitis Optica, a rare autoimmune disease which currently has few effective treatments and no cure. I am doing my part to change this: the first annual Dining for NMO Day will take place on Monday, October 19th, and I am asking you to kindly support.
The hubs likes to catch me on candid video. He also likes to put them in hyper lapse & add soundtrack. Here I'm doing assisted pull-ups w/ my trainer. My biceps & lats hurt for 4 days after this! A video posted by Christine Ha (@theblindcook) on Oct 10, 2014 at 7:50am PDT Happy 2015! As you might detect from last year’s post about getting fit, I don’t really believe in New Year’s resolutions; I’m of the mind one should set goals whenever one is ready instead of waiting for
Back in November, I’d gone to the 2013 NMO Patient Day hosted by the Guthy Jackson Charitable Foundation in L.A. It was the fifth year for the gathering/reunion, and personally my third time attending. However, it was my first time attending post-“MasterChef.” This time, I was asked to close the day’s panels and workshops with a talk. By now, I’ve done a good number of these, but I still get a little nervous all the same. It helped to remember that everyone there is happy to see and hear from
In the midst of my NMO journey, I found the Guthy Jackson Foundation and attended my first NMO Patient Day in 2010. That was where I met Erin and Jenna, my two NMO partners in crime, and we started NMO Diaries shortly thereafter, an empowering resource for those living with NMO.
It’s the beginning of November, and that means the holidays are right around the corner. And that means draining your bank account to buy unappreciated gifts for your significant other, your children, your great uncle, your neighbor, your coworker, your boss, your pets…Then there’s the long hours (days?) of holiday cooking only to result in a dry turkey that nobody touches. And then there’s the stress of feeling your gut oozing out over your waistline and then the dilemma of trying to finish that dry turkey yourself since you hate
To show my appreciation for your purchase of #teamchristine t-shirts and thereby donations to the Guthy Jackson Charitable Foundation, here is a little video expressing my gratitude.
I haven’t been one for posting about food lately. After my first round of routine Rituxan last month, my vision deteriorated slightly. We decided to wait to see if it improves after the second round of Rituxan, but unfortunately, it remained the same: mildly worse than baseline. Dr. Greenberg, my neurologist in Dallas, decided to move forward with high-dosage steroids with the hopes that they will return my eyesight. We had to go with the oral route since it was right around Christmastime, and getting in to an outpatient clinic
It’s that time of the year again. You want to enjoy the chilly weather, the Noel season, the gatherings with loved ones, hot chocolate, eggnog, hot pot, turkeys and hams and pot roasts what have you. But what ends up happening is you’re lying in bed next to Death, shivering and sweaty and feverish and pissed. Why is it that the flu is so common during colder weather? My mama used to always warn me if I didn’t wear my jacket and gloves and thermals, I’d get sick. But I’ve