Can’t see it? Just do it. Stuff for the blind and everyone else.
Can’t see it? Just do it. Stuff for the blind and everyone else.
The year is coming to a close. It’s been a wild 2012 for me, that’s for sure. And I’m sure 2012 has been a memorable year for many of you, too. Here is a 6-minute video documenting the events of 2012, and I’m happy and humbled to be a part of the momentous declaration. (Keep your eyes peeled, and you’ll catch a glimpse of me towards the end.) Thanks to Alphons who originally posted a link to this video on my MasterChef Facebook page.
I don’t know what’s come over me. The older I get, the more daring I become. Or maybe the courage came with the vision loss, an illogical need to overly compensate to feel “normal”—“everything you can do, I can do too.”
Whatever the motivation, it has driven me to skydive two years ago and ski last year. My most recent adventure involves strapping both my feet to a board and skidding down an icy mountain. That’s right, I tried snowboarding last month. A bunch of friends decided to take a trip to Breckenridge again, and again, I called the BOEC to schedule boarding lessons. I was surprised to find that boarding came more naturally to me than skiing. I was less miserable this time and could even say I had fun. I was psyched to be able to go down the green and connect my turns a little from toe to heel by the second day. My teacher insisted that I was better than a lot of sighted beginning boarders. I think the key was the no fear factor—because I couldn’t see how steep a slope was or where the obstacles were, I just had to go with it and fully trust my instructor. I also think I had great instructors who, obviously, are highly trained. Thanks, BOEC, for helping people of all abilities enjoy the outdoors.
Here is a video John got of me snowboarding down the green with Wendy, my instructor. I’m slow as hell, but hey, I can say I carved on my very first trip! I hope this video inspires you—know that you can really do anything if you put your mind to it. Happy New Year, everyone!
I haven’t been one for posting about food lately. After my first round of routine Rituxan last month, my vision deteriorated slightly. We decided to wait to see if it improves after the second round of Rituxan, but unfortunately, it remained the same: mildly worse than baseline. Dr. Greenberg, my neurologist in Dallas, decided to move forward with high-dosage steroids with the hopes that they will return my eyesight. We had to go with the oral route since it was right around Christmastime, and getting in to an outpatient clinic for IV steroids would prove to be difficult. (A side note: why does it seem like all my health problems arise during such inconvenient times like holidays and natural disasters? I know I’m not alone in this, too.)
Perhaps the oral steroids would work out better financially for us anyway since we haven’t renewed my Cobra insurance coverage, and we haven’t been able to enroll in John’s insurance through his new company. Regardless, I hadn’t been on such a high dosage of steroids in so long that I’d forgotten all the weary side effects that come along with them: extreme itchiness, hot flashes, taste distortion (constant metallic taste in dry mouth), increased appetite, general discomfort and bloatedness, constipation, restlessness, and insomnia. I hate all of it except for maybe the restlessness but only because it helps me turn into some extraordinary productive machine; I’ve been cleaning out the closet and tidying up the house and thinking about the novel like there was no next hour in the day. John took a forlorn picture of me yesterday at 11 PM. I was in my pajamas in the closet buried underneath boxes of shoes and bags of clothes trying to figure out what to donate and what to re-stack neatly on the shelves. He threatened to post the photo on Facebook if I didn’t take a sleeping pill right then and try to rest.
Needless to say, despite what you’d think with the increased appetite and energy, I haven’t been in the mood to cook or eat much. In fact, I’ve been kind of moody with what we NMO patients call “‘roid rage” lately. That’s why it’s important to remind ourselves of the fun and funny things in life. Like these two pugs who triple as best friends and guide/VI client. John sent me this post the other day, and we immediately thought of Jenna, my NMO Diaries sister who owns a pug of her own, Marmaduke.
Elly is a blind pug from Wales who relies on her pug friend, Franky, to guide her around town. How cute is that? And so I leave you with this lasting impression of 2011. Remember what extraordinary blessings we have in this world despite our circumstances. With the right group of friends and support, we can survive anything, and we can survive it with a smile.
If you’re like most people, this time of year is not always one of family fun and relaxation. It’s a season of hustle and bustle, of scouring the malls and web for that perfect gift (or gifts) for your spouse, child, grandchild, best friend, crazy aunt, postal carrier. No, the holidays are not stress-free at all. And if you’ve got a visually impaired person on your Christmas list, you may be at an even greater loss as to what to get her.
Not to fear. The folks over at AccessWorld have put together their annual list of holiday gifts for the sight-impaired. First on the list is cooking gear for the blind. Check it out and get some great ideas to give to that special sight-impaired someone in your life. Now visually fine crazy Aunt Wanda? Can’t help you there.
Who is the Blind Geek? Me, that’s who.
In order to streamline topics, I’ve started up a new blog dedicated to tech news and reviews for the blind: the Blind Geek. That way, the Blind Cook can concentrate on all things food related. The Blind Geek is already up and running–all content from this blog under the “Technological advances” category has been copied over there–and from now on, all tech related entries will post only on The Blind Geek. Please be patient: the blog is still undergoing a makeover though it’s functioning for the most part. Also, my techie husband, John, will also be a contributing writer to the Blind Geek. I hope you decide to subscribe to both blogs. Any feedback is welcome.
Tonight as I was covered in flour from making chicken marsala, my iPhone kept ringing over and over, the caller persistent in reaching me. Finally after washing my hands, I swiped and double-clicked via the clever VoiceOver technology and found that it was my husband calling from his evening jog to tell me Steve Jobs had died. I asked my Apple fanboy of a husband if he cried, and he said, “Almost.” When I hung up, I texted a friend, and as I returned to the sizzling pan, I was surprised to find myself sad beyond what I’d expected of such news.
Steve Jobs became a household name after I met my now husband who turned me on to Apple products back in 2007. Since his own conversion years prior, John had converted dozens of friends, family, acquaintances, and even sometimes strangers perusing the computer aisle at Best Buy on to Apple. Since the iPod, Steve Jobs has become a household name everywhere, his innovative products popping up in homes across the globe. People ate up the iPod, then the Macbooks, then iMacs and Mac Minis and iPads–nobody had ever seen anything like those Apples.
The story behind Apple and their history with Steve Jobs is fascinating, and the world will get to read all about it come November 21 when the long-awaited Steve Jobs biography is released. Even months before it’s stocked on the bookshelves, Steve Jobs’s biography has been a top selling pre-ordered item on Amazon. Timely coincidence that the biography was due out on bookshelves so close to his passing? Maybe, but supposedly the book’s release was pushed up to November because everyone knew Steve wasn’t doing well, this notion only fortified by his resignation as Apple’s CEO only months before. And now with his passing, there is no doubt the book will be a bestseller.
Tonight, even the Apple website, which is always littered with product advertisements, only displays a full-screen portrait of Jobs with his life span, “1955-2011.” I can only imagine the ferocious dumping of Apple stock tomorrow once that morning bell rings on Wall Street.
Apparently, death escapes no one.
No one wants to die. Even people who want to go to heaven don’t want to die to get there. And yet death is the destination we all share. No one has ever escaped it. And that is as it should be, because Death is very likely the single best invention of Life. It is Life’s change agent. It clears out the old to make way for the new. Right now the new is you, but someday not too long from now, you will gradually become the old and be cleared away. Sorry to be so dramatic, but it is quite true.
Your time is limited, so don’t waste it living someone else’s life. Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.
No matter if you’re a refugee who had been working toward a triple degree in law, philosophy, and literature before escaping from a war-ravaged country on a naval ship; or if you’re a creative genius who changed the face of technology; no matter if you were my mother or if you were Apple’s CEO; death is the destination we all share. (You should really read Steve Jobs’s commencement speech–it is truly awesome and inspirational.)
It is an eerie coincidence that Steve died the day after the latest Apple announcements, but his legend lives on. The new iPhone 4S boasts Siri, the virtual assistant that lets you communicate with your phone as though you were speaking to your butler or KITT the Knight Rider car. John had been harping about this new phone feature for the past several weeks, and while I admitted it was cool, I wasn’t sold; a part of me wanted to hold out for the next round numbered model up: the iPhone 5. But then tonight, John played me this video, and I think I’m in love.
John told me the last woman in the video is reading Braille and then uses the new iPhone 4S to text her friend. More power to the blind!
Apple has changed the world. Steve Jobs had changed Apple. By transitive property, Steve Jobs changed the world. He envisioned every household owning a personal computer. He envisioned it, and then he made it possible. And he made it so that even blind people could use it. He empowered everyone. He empowered the blind.
Thank you, Steve Jobs. May you live on in our innovations.
Stay hungry. Stay foolish.
Last year, I attended the Guthy Jackson Charitable Foundation in L.A. This year, I was unsure if I could go, but things fell into place, and it looks like I’ll be coming once again. I’m thankful for these sorts of gatherings because not only does it give hope and knowledge by the spread of information, it builds community. NMO can often be a lonely disease, and (as ironic as it sounds) it’s wonderful to be in a room full of people who share the same battles. It was here that at this same time last year I met Erin and Jenna, and the birth of NMO Diaries commenced. I encourage those who have NMO or loves somebody who does to attend the 2011 NMO Patient Day to be held on November 9 at the Hilton Beverly Hills in L.A. Maybe I’ll see you there. And even if you can’t make it in person, you can view it from the comforts of your own home for the events are broadcasted over the web for full accessibility for those who cannot travel.
It seems like all I’ve been complaining about lately is the unaccessibility of so many things on the internet, e.g. Facebook, iTunes, Evite, and so on. Oftentimes, it bleeds into my frustrations with my own hardware; my PC-run JAWS is slow, crashing often, leaving me with just the blue screen of death. (Thank goodness for residual vision or else I don’t know how I’d know I’d gotten the blue screen.)
When I first met my now husband, he was an Apple fanboy. Now that he’s my husband, he’s still an Apple fanboy. He turned me on to Apple Macbooks, telling me what he tells all Macbook virgins: “Give it two weeks. I guarantee you’ll like it so much more than Windows and PCs.” And he was right. Everything ran so much simpler and more efficiently. The layout and functionality of the OSX required a small learning curve, but after two weeks, I was practically a Macbook pro (with a lowercase “p”).
I started out using Apple when it was the era of the Tiger OSX. And with each subsequent OSX upgrade (and thus, the feline superiority scale), we are now in the era of the Lion. I was already blown away with the Tiger OSX’s VoiceOver capability, but now Lion boasts a most advanced VoiceOver.
My first laptop was a 17″ Dell PC–I bought something with a huge screen because at the time, I was only beginning to lose my vision so I relied mostly on zoom magnification to use my computer. I magnified all the fonts in my Word docs to 30+-point font. After meeting John, I moved over to Apple and got a 15″ Macbook Pro. Then my vision worsened even more until where it is now, and I could no longer rely on screen magnification. Instead, I had to start using screen readers, so I decided a 15″ laptop was too heavy and bought a 13″ Macbook since seeing the screen no longer mattered. Last month, I sold my 13″ Macbook and bought the new 11″ Macbook Air because I wanted something ultra-portable, especially because attending many classes and conferences the last couple of years made even lugging a 13″ around annoying. After spending days setting up and moving over files to my new 11″, I said to my husband, “I feel like all my past laptops were just boyfriends, and now I’m finally married to one.” Yup, I plan to run this Macbook Air to the ground.
The Macbook Air came with the Lion OSX. Without further adieu, here are the blind user observations I’ve had over the past month.
Lion OSX is supposed to be more compatible with Braille displays, and its VO features are the best yet. I tried to learn about it but got overwhelmed with the page. I’m considering paying $100 to get the one-on-one tutorial with the Genius Bar to learn all about VO. I still do not know how to navigate web browsers and inernet sites with VO, and I know this is possible. Hopefully this will allow me to use VO to its full capacity, and then the world is mine!
Do you have questions about the Lion OSX or Apple’s accessibility? You might be able to find VoiceOver answers here. Want to know more about the Lion? Learn about the Lion OSX here. Know how to use VO with Lion? Teach me in the comments section, please! Or just want to speak to your personal experience with Apple, Macs, VO, or Lion? Your comments are welcome, too.
Deb C. recently friended me on Yelp and checked out this site upon seeing the link for it in my profile. She sent me a kind note telling me to keep it up but also had a very pertinent question: how do I get around?
I was going to send her a link to a post I’d written on this blog about the MetroLIFT, but upon searching for the post, I realized I never wrote one. Egad! So here it is, the long awaited post of how the visually impaired get around Houston.
I first heard about MetroLIFT from my orientation/mobility (OM) trainer who, through Lighthouse of Houston, helped me become more independent by use of a white cane. Those lessons were scary in themselves, and I should save them for a later post (or if it’s meant to be, a future memoir). But my OM instructor was the one to introduce me to the shared ride service that is called MetroLIFT. If you ever see those short buses driving around town and wondered who was on it, it’s those who can’t drive themselves. And those yellow cabs? More often than not, they’re also contracted by Metro to run MetroLIFT services. In a city like Houston where most everyone has cars, the need for taxi transportation is nearly nil, so many of the cab companies “loan” their cars to MetroLIFT.
To qualify for MetroLIFT service, you will have to go for an interview. I had brought my Certificate of Blindness (which was issued by DARSafter an opthalmology exam) with me for proof of my disability. If you’re approved for MetroLIFT service, you will receive a MetroLIFT ID in the mail which should be presented to the driver before every ride. (Apparently, there are people out there who abuse this transportation system.)
The service isn’t free but it’s incredibly affordable. There are two payment options: the pass or the ticket. If you plan to use MetroLIFT frequently (e.g. going to and from a full-time job), the pass will be the more economical route. I, however, am a graduate student with classes maybe once or twice a week, so I opt to purchase MetroLIFT tickets. Whether you use the pass or the ticket, that and your MetroLIFT ID should be given to the driver at the start of each ride. A monthly pass which gives you unlimited rides for one month costs $38.60 while an annual pass is $347. A single ride ticket is $1.15. I buy my tickets in sheets of ten for $9.75, making each one-way trip less than $1–cheap if you consider the prices of gas, car maintenance, and auto insurance. You can purchase ticket sheets at almost any large grocery store’s courtesy booth. As a disabled patron, you can also have one person accompany you free of charge.
To schedule a ride, call the reservations line (see below for all phone numbers) and speak to an operator if it’s your first time to or from a particular destination. Once the address has been recorded in your file, you can use MAX, the automated service, to schedule rides. Rides must be scheduled by 5 PM the day before.
MetroLIFT is convenient for those of us who can’t drive ourselves, but it’s not without its downsides. My chief complaint is the time used up when riding MetroLIFT. For example, I live 20 minutes from campus without traffic, but when I ride the MetroLIFT to school, I am often on the bus for an hour or two. I know the LIFT is a shared ride service (meaning the bus picks up and drops off other patrons along the way), but seriously? Then there is the late factor. I always input my appointment time (time I want to reach my destination) as 30 to 45 minutes before the actual time I want to be there just to be on time. Sometimes I am 2 hours early for class, and other times I am 20 minutes late. It is so varied that it’s not always dependable. They say to speak to a supervisor if your ride is late, and you’ve called twice without results, but most of the time, the dispatch operators don’t seem to care. I don’t even know which is worse–arriving way too early for class and knowing I could’ve been at home getting other things done, or running into class late and breathless and looking truant. I’m not the only one with this complaint; KHOU did a story on MetroLIFT client complaints last year.
Of course, riding the LIFT has its share of stresses, but in the end, I am still grateful there is an inexpensive, relatively reliable transportation service for the disabled. For now, it seems to be our only option short of hiring a personal driver. And if you’re not a millionaire, MetroLIFT will have to do for now.
To reach MAX the automated service, call either the reservations or dispatch line and press 1.
Use the MetroLIFT yourself or know somebody who does? What is your experience?
Today I continue my rave about the iPhone…
Because I used to have vision, I know what colors look like. That is, I know that white is lighter than black, what red or blue or purple look like. But what if I had been born completely blind? Even now as I acquire new clothes in my wardrobe, how do I know where the shirt belongs in the scheme of things? (I organize my clothes in ROY G. BIV order–something I did even before I lost my vision.) How do I know if my new tank top matches better with my silver or gold shoes? First, you need some fashion sense and color coordination skills already ingrained in your brain; For that, you’ll have to look elsewhere. But if you can’t tell what color the new tank top is, if you just can’t see well enough to know if it’s red or green (two colors that my washed out eyesight mixes up often), then Apple has an app just for you.
Kolorami is an app for the iPhone, iPad, and iPod Touch that helps the color-blind and vision-impaired identify colors. Making sure there’s ample lighting for the camera to pick up the shade, hold the iPhone/iPad/Touch up to the thing you’re trying to figure out–say, about a couple of inches from it. Then click on the “Determine Color” button, and within a few seconds, the app will break down the color for you: “10% brown, 90% dark brown.” Ah, yes. Gold shoes it is.
I’ve tested the app out on clothes I’ve had since before my vision loss so I knew not only which color it is but exactly the shade, too, just to see how accurate it is. I find that Kolorami usually gets it right in the general ballpark of the color, but it can often be off in identifying percentages of shade. E.g. the thing I tested it on earlier was really beige, so it would’ve been more accurate if it said, “90% light brown, 10% brown.”
I’ve also read that some people use the Color Identifier app (like my aforementioned fellow blind blogger), but I have yet to try this app out. Color Identifier (or Color ID) seems to have more versions (including one that costs $1.99 in addition to the free one) and ratings (compared to Kolorami’s free one with zero ratings). Has anyone tried both? What are your thoughts? Should I switch?